"We must be willing to let go of the life we planned... so that we can have the life that is waiting for us!!!!"

Tuesday, March 13, 2012

Life with a Little Bit of Crazy ;)

CRAZY!  That is an understatement for what I feel like our last several weeks have been.  For starters, sickness just about wiped out our entire family.  Two weeks ago Monday, Taelyn got hit with the flu.  Tuesday was Clint's turn.  Wednesday of course was Taleigha.  And why not top off the following day with myself getting it!?!  Friday then went right back to Taelyn when she ended up getting Croupe.  Saturday and Sunday was awful as both of the girls were very ill.  We were very much hoping for a better 'next' week.  Well, no such luck.  Poor Taleigha ended up with a dreaded right ear infection.  On top of that, they both have been dealing with the other "crud" (the runny nose, cough, etc.).  Taleigha really seemed to struggle the most, as her seemingly fragile little body just couldn't shake everything that had hit her.  Now this week, we again had hoped for a better start, and yet again, there was no such luck.  We ended up bringing her back in to see her pediatrician, just to find out that her antibiotics didn't work for the first ear infection, and she now has a double ear infection!!!  My goodness!!!  Need I say any more than that one word...?!  CRAZY!!  We have to be on an upswing now, right?!

On to a big "Taleigha Update"!!!  As you know (from a lot of my previous posts), Taleigha has struggled so severely with sleeping issues and we've been trying and trying and trying to find some sort of resolve.  After trying just about everything we possibly could... we made the decision to finally try her on some medication in the beginning of February to see if it would help her sleep.  She was on that medication for roughly two weeks with no real positive change.  We just truly felt at that point that this medication was not going to be our answer, and that it really wasn't in Taleigha's best interest to keep trying (adjusting medication levels really didn't feel right either).  If anything, we felt like it was making things worse (especially looking at her daytime demeanor after starting this med).  The doctor agreed to ween her off of it.  She said that there was one more medication that she was willing to try.  We wanted to let Taleigha get a "fresh start" so to speak, so we waited a full week to make sure that the other medicine was surely out of her system before we started her on the new medication.  Last week Thursday (night) was her first night taking her new med, and... drum roll pleeeease... Taleigha slept completely through the night!!!!  Not only that, but Taleigha has slept through the night, every single night since then!!  YAY!!!  We are up to five... FIVE... full nights of sleep for her!  (All of you that are reading this right now, if you would be so kind as to knock on some wood, I would greatly appreciate that!! ;) Lol.)  I could really get used to this, let me tell you!!! ;)  

On a serious note, we honestly just keep praying that this continues to work for Taleigha, as she truly, truly neeeds this positive change in her life.  For so long, I felt like I was looking at my daughter and could do nothing but watch her already frail body grow weaker as the days passed.  This was changing her.  It devastated me.  And so, walking into Taleigha's room on Thursday night, I couldn't help but just sit and watch her sleep for a while.  For the first time ever, I got to see my little girl in a peaceful and sound sleep.  I kissed her sweetly on her forehead and whispered a prayer of thanks to our loving Father for continuing to hold us in His hands!  I cannot describe that moment in words.




"I am a parent of a child with special needs. 
Sometimes none of the pieces fit, despite everything I try to do. 
 But the most important thing I’ve learned is to keep trying. My child is worth it and so am I." ~HOPELights

3 comments:

  1. So glad she is finally getting some rest! I can only imagine the relief that you and Clint are feeling by all of this! Hugs and love :) <3

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  2. So awesome, I hope thing continue to improve! Like I've said on CLints posts and yours--if we can help in anyway let us know...Matt can help with the house, I can babysit--whatever you need! :)

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